My typical symptoms that go along with EDS have been crazy since I subluxed my neck three weeks ago.I originally wanted to get blood work done to see if there was anything of concern. I was talking to another bendy friend of mine who suggested that it sounds like Dysautonomia, esp. after the neck sublux. I went to the GP where she didn't know what to think, other than to see if I could get genetic testing done for it. I don't meet any of the 5 criteria (being of a certain ethnic minority, no papillae on the tongue, no tears when crying and two others that I don't remember). Apparently my insanely high pain tolerance has nothing to do with my symptoms.
Interestingly enough, I did my own research and found that dysautonomia is very common with EDS and that I show almost every sign of it.
- - Increased heart arrhythmia's when at rest or laying down
- - Increased feelings of dizziness, seeing stars and almost passing out while at rest
- - Increased trouble regulating body temperature
- - Insane reflux, even with just water
- - Depression is a big problem, more than the "EDS is ruining my life" that it was before
- - Sleep is a mess, I either have insomnia or can't get enough sleep
- - Increased trouble breathing and chest pains that I usually don't get
I've been taking all of my supplements as I should be, eating what I should be and not doing anything stupid or careless.
http://en.wikipedia.org/wiki/Dysautonomia
http://www.dinet.org/images/newsletter2.pdf
http://www.ipej.org/1004/shomu.pdf
And there's always the most amazing source of info on the Facebook EDS discussion boards.
I also have a bunch of my other doctors looking to it, hopefully we'll have some kind of answer soon.
So...........I have no idea what to think, or where to start.
Any suggestions?
" Living is easy with eyes closed misunderstanding all you see..."
(John Lennon)
(John Lennon)
